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Family Involvement

Consumer Education

Consumer Education

For Residents, Families and Friends of Residents

Long-term care facility Residents, and Families and Friends of residents should expect quality of care and life for themselves and/or their loved ones, and engage in advocacy efforts to raise the standards of care.
You can make a big difference in the delivery of quality care.

Please use the links below to special advocacy tools and resources that may help you advocate effectively for yourself or your loved one.

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Residents' Rights Choosing a Nursing Home
 Resident Councils Family Councils
Fact Sheets Citizen Advocacy Groups

Make a Difference!

Federal Law and Regulations
Long-Term Care Omudsman Program Guidelines and Recommendations
NCCNHR Publications

 

Residents' Rights

Residents' Rights Week 2008: October 5-11! Recipe for Home: defining and creating home in long-term care facilities

Residents' Rights Week is the first full week of October each year. Visit the links below for consumer information and resources that can help you support an individual resident's rights or be involved in an important national awareness campaign.

Resident Councils

Residents in a facility can join together to form a united consumer voice which can communicate concerns to facility administrators and work for resolutions and improvements by forming a family council.

  • Visit NCCNHR's Resident Council Center for information on the following areas:
    • Family Council Rights and Federal Laws & Regulations
    • Resident Council Exchange
    • Fact Sheets
    • Long-Term Care Ombudsman Programs
    • NCCNHRResident Council Projects
    • Additional Resources
    • and more!

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Family Councils

Family members in a facility can join together to form a united consumer voice which can communicate concerns to facility administrators and work for resolutions and improvements by forming a family council.

Visit NCCNHR's Family Council Center for information on the following areas:

  • Family Council Tips
  • Family Council Rights and Federal Laws & Regulations
  • How to Learn and Take Action
  • Fact Sheets NCCNHR
  • Family Council Projects
  • Family Council Exchange
  • Family Council DVD and Guide
  • Additional Resources... and more!

Choosing a Nursing Home

Resources on How to Choose a Nursing Home:
  • Nursing Home Compare is a tool on the Medicare website that displays quality measure data, deficiencies and other information about nursing homes. It is organized by state and county to help you search for facilities near you or anywhere in the country.
  • Visit NCCNHR's Culture Change website. Learn about the grassroots movement to transform the culture of aging in America. Also visit the Pioneer Network's website: www.pioneernetwork.net.

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Fact Sheets

Read consumer-friendly fact sheets on issues affecting residents such as residents' rights, malnutrition, the use of restraints, and changing the culture of long-term care facilities.

 

Citizen Advocacy Groups

Citizen advocacy groups (CAGs) are effective in addressing serious quality of care issues on a broader scale. Citizen advocacy groups offer an opportunity for family members, friends, and residents to join with others to work to affect policy, legislation, and government services to improve quality of care in long-term care.

Visit NCCNHR's Citizen Advocacy Group Centerfor information on the following areas:

  • Opportunities for CAGs
  • CAG News
  • CAG Toolkit
  • Finding CAGs
  • Learn and Take Action!
  • Fact Sheets
  • NCCNHR's Consumer Center
  • Long-Term Care Ombudsman Programs
  • NCCNHR's Family Council Center
  • Additional Resources

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Make a Difference!

Learn, Take Action, & Advocate!

  • Learn and Take Action to improve long-term care in your area, and across the U.S.!
    • Visit NCCNHR's Action Center to view up-to-date information on Congressional Hearings, Bulletins, LegislativeProposals, etc.
  • Learn and advocate for restraint free care as part of NCCNHR's California Voices for Quality: Strategies in the National Campaign for Excellence in America's Nursing Homes project.
    • The project provides information and tools to train ombudsmen to engageconsumers in quality improvement, byeducating and engaging consumers to advance better quality care in nursing homes. Consumer-oriented materials,including fact sheets, have been developed; training programs and educational conference calls were held; and materials are posted on the website.
  • Advocate Effectively.
    • Read a list of suggestions for advocacy tips as you advocate for yourself or yourloved one, including how to document concerns.
  • Contact the long-term care ombudsman program in your state.
    • In addition to actingas an advocate for residents, ombudsmen can educate residents, families andfriends about resident rights, state surveys, and federal and state laws that are applicable to nursing homes and other long-term care facilities.
  • Participate in the in the Advancing Excellence in America's Nursing Homes Campaign.
    • NCCNHR encourages all consumers to participate in this national campaign. This is an opportunity to promote quality care practices in every nursing home in the country.
    • Learn more about NCCNHR's involvement in the Campaign, and ways you can get involved!
  • Visit NCCNHR's Government Policy website.
    • Learn about staffing issues, view an action center, etc.
  • Visit NCCNHR's Culture Change website.
    • Learn about the grassroots movement to transform the culture of aging in America.
    • Also visit the Pioneer Network's website: www.pioneernetwork.net.

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Federal Law and Regulations

The following links connect you to what the federal law and regulations say about particular issues regarding long-term care.

  • OBRA '87 (The Nursing Home Reform Law) 20th Anniversary
  • Read asummary of OBRA '87, the full federal regulations, and the Medicaid and Medicare provisions.

Long-Term Care Ombudsman Program

Find contact information for the long-term care ombudsman program in your state. In addition to acting as an advocate for residents, ombudsmen can educate residents, families and friends about resident rights, state surveys, and federal and state laws that are applicable to nursing homes and other long-term care facilities.

 

Guidelines and Recommendations

Dementia Care Practice Recommendations for Assisted Living Residences and Nursing Homes, Alzheimer's Association Campaign forQuality Residential Care- September 2006.

National MS Society Develops Guidelines for Facilities and Home Care.

 

NCCNHR Publications

View available publications, including those written specifically for families and friends of nursing home residents.

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